A Typical 24 Hours With Fibromyalgia

Three years ago, my doctor said the F-word… that’s right, fibromyalgia. I ignored her. But for the last year I have been in constant pain and I find it really hard to focus on anything other than finding pain relief or finding a new treatment that might actually make a difference. 

I haven’t really been writing about the pain. Everyone in my life knows that I have neck pain and headaches. Some people think it’s my back that hurts.

Even though we have all had pain and sore body parts, the fact is that anyone who hasn’t experienced non-stop widespread pain for weeks or months or years really has no idea what this experience has been like. 

I have felt that writing about it would end up being a whiny piece of writing about boo hoo, poor me, I hurt. Or that the intention behind writing it would be to seek sympathy. I also worry that I don’t know how to fully explain my experience in a short and concise way. I worried that it would get boring and repetitive and too long to read. 

I now think it is something that I need to do. I think I need to write about the physical pain and its emotional toll. 

artwork of woman holding her neck, back view, by fox tales

I thought the easiest way to explain my experience would be to go through a typical 24 hours in a day in the life of me. 

It’s 9 p.m. and I’m laying on the couch with my fingers pressing into my neck and the base of my skull, trying to recreate what relieving treatment I have received. Trying to relieve some of the throbbing in my neck and sharp pounding in my head. I’ve somehow convinced myself that I have to stay up until 10. When 10 finally comes, I climb the stairs, get ready for bed, and collapse into what I’m hoping will be the most comfortable place in the house. It takes me several minutes and several attempts to reposition myself. Does my neck feel straight and aligned with my spine? If I move slightly to the right will the stabbing pain in my thigh stop? If I roll over will that relieve some of the pain on that hip? 

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