Navigating life with an invisible illness like fibromyalgia is full of challenges and obstacles. Fibromyalgia can affect many aspects of your life – from your physical well being to your relationships with family and friends (and everything in between). Learning how to live with these life-altering changes doesn’t come easily or quickly – but many have learned through experience how to make the most of life with fibromyalgia.
While doctors and medical practitioners offer valuable advice and guidance in treating chronic pain, sometimes the most helpful advice for actually living with fibromyalgia comes from those who have walked a mile in your shoes. Fellow sufferers can offer valuable insights on what to expect on a day to day basis and tips for handling the life-altering realities of fibromyalgia.
One of the great things about today’s world is the ease at which we can connect with people from across the world and share experiences and wisdom with each other online. The Internet can be a valuable resource for fibromyalgia sufferers looking for information, help and support as they seek to understand and live with this chronic illness.
We’ve searched out tips and advice from some of the best fibromyalgia and chronic illness blogs on the Internet. As chronic pain sufferers themselves, these women share valuable insights and perspectives that can help you in your struggles. Lets take a look at 4 traps these fellow fibromyalgia sufferers say you should avoid and what to do to avoid them:
The Explanation Trap
In her blog post 8 Things Spoonies Need to Know, blogger Julie Ryan of CountingMySpoons.com writes, “We often get stuck in a rut of feeling like we have to explain ourselves, or provide excuses for ourselves, our actions, our need to ‘pencil it in’ or cancel at the last minute. Constantly feeling that we need to explain ourselves only adds to the guilt that we shouldn’t be feeling anyway. It’s frustrating. There’s no reason that you have to provide an explanation for your actions (or lack of actions). If you can’t do something just say ‘no’. If someone wants to be difficult about it, walk away. If you feel comfortable enough with someone that you want to share the challenges your illness provides, do so. But, there’s no need to feel that you have to explain yourself every time you need to say no or set a limit.”