Fibromyalgia is typically thought of as an “invisible” illness. But what if you look closer? What’s going on behind the brave face, the body that to others appears “fine?” Often, it’s days spent on the couch, feeling too nauseated to eat, excruciating nerve pain, and pushing through it all while few people see your struggle — that’s what fibromyalgia looks like.
We partnered with the National Fibromyalgia Association to ask our followers to share a photo of what their fibromyalgia looks like, and what symptoms they were experiencing in the photo. Though others may think you “don’t look sick,” if they take a closer look, the pain, fatigue, and strength it takes to get through it all becomes clear.
Here’s what the community shared with us:
1. “We had to leave about 10 minutes after this photo was taken because of the excruciating pain I had throughout my entire body. I was ecstatic when a part of my body would go numb so I had a little reprieve from the pain for a few minutes. My hands couldn’t grip a bottle of water, I could feel every step I took throughout my entire body. I was on sensory overload, flashing lights causing a terrible headache and the noise causing my shoulders/neck to tense up. All while having 11 medications in my system, including Tramadol. If we get to go again, I’ll have to get a wheelchair.”
2. “In this picture my service dog is actively tasking. She has alerted to my problems with balance, either a sign of weakness from fibro or an oncoming syncope episode, is giving pain relief to my aching feet and ankles, and is warming my feet due to a Raynaud’s flare up. Fibro has taken my independence, and now I depend on various medical equipment, medications, family/friends, and mostly my service dog to stay safe. I’d be homebound without my dog most days.”